I’m really tired of healthy people bitching about the inconveniences of face masks and social distancing during a pandemic of a viral illness. At least y’all get some warning and know it’s around.

With chronic illness, it comes out of fucking nowhere and one day, you’re just sitting there wondering why you can’t bend your damn fingers. Why it hurts to get out of a chair. Why it hurts to lay in bed and you can’t sleep because it’s constant. And there’s no fucking cure. You’re stuck with a new normal and life is never again the same.

June marks 25 years since my diagnosis. Next fall season will mark my 26th year. I went from Fall to June and was becoming a cripple, at age 15/16. And people wanna complain about the pandemic new normal and wearing a face mask for an ounce of prevention.

Do you know how many of us wish we could have prevented our chronic incurable painful disease? So many people have already been robbed by Covid-19…patients, families, dead or injured. Why can’t anyone fucking realize that you don’t ever get that shit back?! It’s priceless. Once it’s gone, it’s fucking gone forever.

Do you really want that kind of new normal? The kind with no new memories? The kind full of tears and dust in the wind? The kind of normal where you can’t really breathe, either because you’re sobbing from your loss so much or because your lungs are so scarred by viral disease.

You better take that last deep breathe now, it’s going to have to last you forevermore. Remember, there are no guarantees.

But if you had that one chance, just that one chance to stop it…would you?

I’m here to tell you that you should. Don’t rob yourself into being devastated by death or disease.

And you will feel devastated.

That I can guarantee.